Story of a Bird Born with A Broken Shell: 9th Annual PID Conference

Report of the third Annual Gathering of the HEART group

"How Fair and Nobel is to bring Smile to a Beating Heart". This is our quote and the nature of what we do, here in the Health & Art (HEART) group, Says Bahareh Jahandoost, a TV personality of children’s programs and director of the HEART.

Kids and Families, the Zanbourak (Little Bee) music group, Bahareh Jahandoost, Mahdi Akbari, also a children program director and Nima Rezaei the founder of the group gathered in National Kids Mental Elaboration hall in Tehran to celebrate the 3rd anniversary of HEART in a reminisce of three years of local and international efforts for mental health of sick kids.

"Shahname Anchoring", a usual performance of HEART gatherings, was performed by young artists; Rayan Mir Farsi, Mohammad Naimi Zaker and Maani Badr Khani, as part of the programm. "Shahname" is an ancient Iranian legendary and historical book, depicting old myths of Iranian Heros and Villains, Kings, Princes and Queens in about 30,000 lines of Poems. Tell-telling theses fascinating stories from Ferdousi’s Shahname is an old costume in Iranian ceremonies. Souorush Hatami Azar leader and composer of the Zanbourak group and his artists attended the next performance, with kids singing along in frequent lines during the performance. Children program TV activist Mahdi Akabari performed a "Painting and Narration" before it was time for Bahareh Jahandoost, Nima Rezaei and Anne Puel a special guest, world top 1% scientists from Paris Necker Children’s Hospital, to get before the lectern to give speech. Jahandoost and Rezaei mentioned the two successful International Pediatric Patients Painting Festivals (IFPPP) in Tehran, 2015 and Budapest, 2016 and the two rounds of Pediatric patients Football World Cups, acknowledging all the casts and members who made it possible and the DHL supporter of the first two IFPPP festivals.

The RCID just passed the 9th consecutive annual conference on primary immunodeficiencies. Organized by the director and research deputy of the research center, RCID has had the honour of hosting world leader in primary immunodeficiencies, Prof. Raif Geha from Harvards, Prof Hans Ochs from Seatle Children’s Hospital, Professor Schmidt from Hannover, Prof. Elenora Gambinieri from Anna Meyer children hospital in Italy, and this year from Necker Children Hospital/ French Institute of Health and Medical Research Professor Anne Puel, assistant Professor of genetics.

This year’s sessions evolved around a comprehensive approach to Head and neck manifestation of Primary Immunodeficiencies (PID), inborn errors of immunity and susceptibility to fungal diseases by Prof. Anne Puel, Respiratory and dermatologic manifestation of PID and Laboratory findings hints for PIDs.

Established in 2010, the ICID is a two-time winner of the Iranian Academy of Medical Sciences "top young research center", finally being recognized as the top research center with more than 6-years’ experience on January 2017 by the academy.

This year ICID conference had something more of a international vibe that previous one. Registration fee was waived for the first time for all international junior attendees and the two-day gathering faced a unique gathering of foreign students, during this year’s annual conference. 

It is worth mentioning that April 22-29th is designated as the week to promote awareness of primary immunodeficiency diseases: World PI Week.

J-Project: A project to support children with Primary Immunodeficiencies

By Farzaneh Rahmani