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Care for a Rare 50,000 Euros Science Award?
In European Union a Disease is Called Rare If No More Than 5 out Of 10,000 Human Beings Are Affected. Rare Diseases Have Become Known as "Orphan Diseases" as Drug Companies Are Not Interested in Adopting Them to Develop Treatments.
Have You Ever Wondered, How Rare is a "Rare" Disease?
In European Union a disease is called rare if no more than 5 out of 10,000 human beings are affected. In the United States, the definition is different as: "[a condition] that affects fewer than 200,000 people [worldwide]". Either way, rare diseases have became known as "orphan diseases" as drug companies are not interested in adopting them to develop treatments.
The Care for Rare foundation is giving away 50,000 € to junior scientists who propose a practical project to enhance understating, diagnosis or care for "rare disorders". Application deadline for the "Care-for-Rare Science Award 2018" is in less than a month. Group apply is also possible, but you need to have a partner scientist from Germany!
The Care-for-Rare Foundation for children with rare diseases is behind all this, in conjunction with the Werner-Reichenberger Foundation. There may be as many as 7,000 rare diseases. Estimates say that about 30 million people in the United States, which is 1 in 10 Americans, and approximately the same number of people in Europe are living with rare diseases. Rare disease community have tried for decades to highlight the fact that while individual diseases may be rare, the total number of people with a rare disease is large. It is estimated that 350 million people worldwide suffer from rare diseases. Unfortunately, 95% of rare diseases have not one single FDA approved drug treatment.
Fill out the online application form in the Care-for-Rare website and upload your application PDF document as indicated and send it before the deadline on July 31, 2018: https://www.care-for-rare.org/en/science-award-rare-diseases-2018